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Description of Service
The London North West Hospitals NHS Trust benefits from a specialist and world-renowned Inflammatory Bowel Disease (IBD) service, predominately based at St Mark’s Hospital, but also covers Northwick Park, Central Middlesex and Ealing Hospitals. The delivery of the service has undergone transformation over the last four years to align with the IBD standards to deliver high quality care with an emphasis on patient-centred care.
The service offers care to all patients above the age of 16 to cover all aspects of Inflammatory Bowel Disease; medical, nursing and surgical treatments, psychological and nutritional support, research and education. The services have been developed and are delivered with the patient’s needs at the heart. Some services are offered as designated specialist multi-disciplinary clinics: Biologic, Adolescent, Medical-surgical for refractory UC, complex Crohn’s and perianal disease and cancer surveillance clinics. The new diagnosis clinic offers educational and supportive environment to dealing with the disease.
Our specialist IBD team consists of five medical consultants, nine nurses, three surgeon consultants, four clinical fellows, one dietitian and two pharmacists supported by psychological service, administrative and secretarial staff.
The full range of services, our aspirations as well as our achievements can be found in our Inflammatory Bowel Disease Adult Service booklet, our strategy report and our annual reports 2017 and 2018, and Nursing Report 2018–2019.
The IBD Team
Clinical Nurse Specialists Madhoor Ramdeen (Lead), Jitka Adio, Pinashwari Naeck-Boolauky, Susie Wen, Michael Cervantes, Comfort Okeph.
IBD Biologics Nursing team, Johncy Baby, Babitha Joseph, Anil Cheruvathur Babu.
Specialist IBD Gastroenterology Consultants
Dr Ayesha Akbar, Dr Naila Arebi (Lead), Professor Ailsa Hart, Dr Nik Kamperidis, Dr Ravi Misra
Surgical IBD Consultants
Professor Omar Faiz, Dr Phil Tozer, Mr Janindra Warusavitarne
Uchu Meade, Anneliese D’Souza
In addition to specific consultant IBD clinics, we deliver specialist multidisciplinary services to offer personalised care to patients:
Adolescent Clinic run by an IBD consultant and IBD nurse every 2 weeks for patients aged 16 to 18 newly diagnosed with IBD who may have different needs to other adults.
Biologics and Innovative Therapies Clinic with an IBD specialist, pharmacist and nurse on a weekly basis to offer counselling to patients about to embark on a new biologic drug or newly approved specialist drugs.
Drug Monitoring Clinic for biologic and innovative drugs run by and IBD nurse or pharmacist to monitor patients on biologic drugs or new specialist drugs.
Medical-Surgical Joint Clinics with a specialist IBD surgeon and IBD medical consultant to understand benefits and risks of treatment options in a one stop clinic. This includes refractory UC, complex Crohn’s with abscesses, fistulas and strictures.
New Diagnosis Clinic offers space for patients to discuss the diagnosis and receive educational signposting delivered by IBD fellow, consultant and nurse.
Rapid Access Clinic on a weekly basis by IBD clinical fellow or registrar for acute relapses or cases needing urgent medical attention to avoid hospital admission.
Surveillance Clinic delivered as virtual clinic and face to face where dysplasia is detected. Depending on the nature this is run by a specialist IBD nurse alongside a surgeon and consultant (IBD or endoscopy).
The IBD Clinical Nurse Specialist (CNS) Team offer the following clinical services:
Telephone advice line 208 235 4155
Nurse-led clinics (for additional education, information and support regarding your condition)
Dedicated IBD Day Care Unit for infusions
Immunosuppressant blood monitoring service
Advanced Nurse Practitioner (ANP) in IBD
We welcome Tracey Tyrell in her new role as IBD ANP. This new role aims to integrate IBD Nursing into primary care and work more closely with GPs. This involves coordinating Education sessions/IBD Masterclasses for GPs in Harrow, Brent and Ealing. The IBD ANP is based at CMH. Satellite clinics have been set up to assist with remote monitoring and supporting GPs.
Monday–Friday: GP IBD Advice Line (NPIBDGP) – **3 month pilot**
Advice for GPs from Harrow, Brent and Ealing only
19th August 2019 to 29th November 2019
Monday AM – face-to-face clinic (IBDCOMN1), Tuesday PM – community telephone clinic (IBDCOMTEL2), Thursday AM – community telephone clinic (IBDCOMTEL4)
A full list of contact details can be found in the Inflammatory Bowel Disease Adult Service booklet.
For patient enquires please use the following:
Tel Advice Line Service: 0208 235 4155
Main fax: 0208 869 5487/ 020 8235 4001
IBD Day Unit: 0208 869 5488
IBD nursing secretary: 0208 235 4026
IBD medical secretary: 0208 235 4124
For support and advice you may also wish to contact CCUK helpline: 0300 222 5700 from 9am to 5pm on Monday to Friday (except English bank holidays). Helpline calls may be recorded or monitored for training and evaluation purposes. Crohn’s & Colitis UK’s policy on confidentiality is in accordance with the Data Protection Act (1998).Alternatively you may wish to access their resources by visiting their website at www.crohnsandcolitis.org.uk or firstname.lastname@example.org or have a live chat with other people with IBD at www.crohnsandcolitis.org.uk/livechat