Department of Inherited Intestinal Cancer Syndromes –
The Polyposis Registry
The Inherited Intestinal Cancer Syndromes are more commonly known as “polyposis” and/or “Lynch Syndrome”.
There are leaflets available to download providing information on the polyposis syndromes, which include:
Familial Adenomatous Polyposis (FAP)
Peutz Jeghers Syndrome (PJS)
Juvenile Polyposis Syndrome (JPS)
MYH Associated Polyposis (MAP)
Serrated Polyposis Syndrome (SPS)
The hospital department caring for these families is the Polyposis Registry. The Lynch Syndrome Families are cared for by the Family Cancer Clinic.
The Polyposis Registry was started in 1924 to record the details of patients with multiple colorectal polyps, most of whom had a family history of bowel cancer. Today the Registry continues to be involved in research, although the main focus is care of patients and their families. Find out more about the history of the Registry.
The main aims of the Registry are:
- Cancer prevention
- Education
- Research
Location Within Hospital
The Registry offices are based in Level 5 of St Mark’s Hospital. Patients will be seen either in Outpatients (Level 3) or on the wards, depending on the duration of hospital stay.
Key Contacts
General Enquiries: 020 8235 4270
Nursing Advice Line: 020 8235 4255
Fax: 020 8235 4278
Website: www.polyposisregistry.org.uk
Email: lnwh-tr.polyposisregistry@nhs.net
Endoscopy: lnwh-tr.endoscopy@nhs.net
Twitter: @PolyposisRegUK
PolyPeople
PolyPeople is a support group for patients, families and friends whose lives have been affected by FAP. For more information, visit their website: www.polypeople.net.
Referral Guidelines
The Team
Professor Sue Clark
Clinical Director & Consultant Surgeon
Dr Andrew Latchford
Assistant Clinical Director & Consultant Gastroenterologist
Dr Warren Hyer
Paediatric Gastroenterologist
Vicky Cuthill
Manager
Jeshu Chauan
Nurse Practitioner
Jackie Hawkins
Paediatric Nurse Practitioner
Patricia McGinty
Polyposis Nurse Specialist
Denise Coleman & Janet Paul
Administrators
Other pages:
History of the Polyposis Registry
Polyposis Information Day
Lynch Syndrome Information Evening