Stoma and pouch care nursing services

The stoma and pouch nursing team

The Stoma & Pouch Teams at St Mark’s Hospital consists of 12 members, including a Consultant Nurse, a Lead Nurse, 5 Stoma Care Specialists, a Pouch Care Specialist, a Healthcare Assistant, a Team Pathway Co-ordinator and 2 Community Stoma Care Specialists.

Last year we produced a Stoma and Pouch Care Information Day, on the 25th of November 2021. You can watch all the content HERE.

Stoma Care Objectives 2020-2021

Our vision

Our vision is to make certain every patient undergoing stoma or internal pouch surgery is well supported, understood and empowered to ensure optimal quality of life is restored.

Mission statement

The Stoma and Internal Pouch Department at St Mark’s Hospital is dedicated to providing individualised, expert and research-based nursing care within the field of colorectal surgery. We aim to offer sustainable services for both inpatients and outpatients, providing an exceptional experience for all.

For our patients and community we aim to:

  • Treat all patients with dignity and respect
  • Provide high quality, evidence-based clinical care
  • Select appropriate and economical yet high quality stoma appliances and accessories that allow patients to return to the lifestyle they desire
  • Work collaboratively with other teams to provide a safe and seamless transfer for patients from acute hospital services into community care
  • Develop robust links with patients to offer long-term support and clinical review
  • Continue to develop and support nursing / medical staff in order to maintain and improve standards of care.

The aim of the nursing service

The aim of the stoma and internal pouch nursing service is to provide an informative and supportive service to all our patients with either a stoma, enterocutaneous fistula or internal pouch. This will begin when you meet your specialist nurse, usually before surgery. You will be given information regarding your surgery and the ideal site for your stoma will be selected. On admission to the hospital, your specialist nurse will talk to you about whether you have understood this information and discuss any questions or anxieties you may have.

After your operation you will be shown how to care for your stoma, including how to empty and change the appliance independently. You will be given information regarding your diet, ongoing supplies, returning to work, common problems and much more.

If you are a local patient, you will be followed up in the stoma clinic two weeks after you are discharged. If you live outside the area then you will be referred to a stoma care nurse based in your area, who will provide ongoing support.

How to refer patients to our services

  • Patients’ GPs will need to send a referral via our Nursing Team generic email – LNHW-tr.stomacare@nhs.net for stoma patients or LNHW-tr.internalpouchcare@nhs.net for internal pouch patients.
  • The referral will need to include patients’ full past medical/surgical history, medications list, any relevant investigations.
  • For any queries regarding referrals contact 0208 453 2196 for stoma patients and 0208 453 2099 for internal pouch patients.

Stoma team

During these difficult times, we would like to make available this Stoma Patient Covid-19 Self Help Guide for our patients. Please click on the following link to read the PDF.

Stoma Care Self Help Guide March 2020 Endorsed by ASCN UK

St Mark’s Hospital Stoma Patient Pathway

Stoma care clinics

The stoma care clinics are for patients to attend for preoperative counselling, routine check-ups, if problems occur or if further information is required. The clinics are for appointments only and the venue depends upon where you are registered with your GP. You can make an appointment by contacting the stoma care department directly or by getting a referral from your GP.

CLINIC VENUE DAY TIME 
Brent Wembley Centre for Health and Care, 116 Chaplin Road, Wembley (Confirm room with reception)  HA0 4UZ Tuesday 0900 – 16.30 
Brent, Harrow, Ealing Stoma Department  Ground Floor   Central Middlesex Hospital  Acton Lane  Park Royal Monday -Friday      09.00 – 15.00 
Harrow Stoma Department  Level 4   Northwick Park Hospital,  Watford Road  HA13UJ Tuesday and Thursday (pm)     1200 – 15.00 
Edgware Edgware Community Hospital, Burnt Oak Broadway, Edgware (Room 62 for now)  HA8 0AD Wednesdays (pm) 1300 – 1630 
Ealing Outpatients 2, Area C, Ealing Hospital, 601 Uxbridge Road, Southall UB1 3HW Thursdays (am) 0900 – 1200 

Rapid Access Clinics for all patients by appointment only. Please contact the stoma team directly for all stoma care or rapid access clinic appointments.

Stoma care contact details

Phone: 0208 453 2196
Email: lnwh-tr.stomacare@nhs.net

Exercising with a stoma

There are a number of safe, gentle and achievable exercises that patients can follow together with advice from their health care professionals. Please click on this link for more information or watch the video below.

Stoma Care – A Guide for Patients

Written by Rali Marinova, Petya Marinova and Zarah Perry-Woodford
St Mark’s Hospital

Our new stoma book will be a useful read for both patients and healthcare professionals. Its aim is to promote self-care by providing stoma patients with detailed information on stoma care and empowering them to independently care for their stoma on daily basis. Additionally, the book will guide them through every step of their life with a stoma and also help healthcare professionals better understand the stoma patients’ journey and specific needs.

If you are interested in purchasing a copy for £10 or more if you would like to help fund research and education at St Mark’s Hospital, as well as reprinting and distribution costs for the book, you can pay using the following payment methods:

Direct Debit or Online Banking – when making a payment please remember to quote ‘Stoma book’ as payment reference.
Account Name: St. Mark’s Hospital Foundation
Account Number: 00085102 Sort Code: 40-52-40

Phone payment – your card details will be collected via telephone and a secure virtual terminal – Point of Sales (POS), will be used to process your payment. You will need to contact us by phoning +44 (0)20 8453 2099

Donation to St Mark’s Hospital Foundation – you can donate to us here

Once payment is complete, please contact us for further instructions regarding shipping by emailing lnwh-tr.stm-stomabook@nhs.net or phoning +44 (0)20 8453 2196.

Patient information leaflets

Advice about eating and drinking when you have a high output stoma

How to take Loperamide

Electrolyte mix (E-mix)

Healthy Eating for People with an Ileostomy

Dietary Advice for people with a Colostomy

Urostomy – Hints & Tips

Stoma patient support groups

Inside Out Stoma Support Group supports anyone with a stoma and is based at St Mark’s Hospital. Tel: 0208 428 4242, email: info@iossg.org.uk

The Ileostomy and Internal Pouch Association (IA) is a registered charity, supporting people living with an ileostomy or internal pouch. Tel: 0800 018 4724, 01702 549859, email: info@iasupport.org

Young IA offers support to young members under the age of 40, either pre-surgery or post-surgery, who undergo either an ileostomy or an internal pouch operation. Tel: 0800 0184 724 / 01702 549859, email: youngia@iasupport.org

Colostomy UK is a registered charity, supporting people living with a colostomy. 24h helpline: 0800 328 4257, email: info@colostomyuk.org

Junior Ostomy Support Helpline (JOSH) provides support for parents and carers of young people living with a stoma and other bowel and bladder dysfunctions through Colostomy UK. 24h helpline: 0800 328 4257, email: info@colostomyuk.org

The Urostomy Association is a registered charity, supporting people living with a urostomy. Tel: 01386 430140, email: info@urostomyassociation.org.uk

Pouch team

Pouch care clinics

The pouch care clinics are for patients to attend for preoperative counselling, routine check-ups, if problems occur or if further information is required. The clinics are for appointments only and the venue depends upon where you are registered with your GP. You can make an appointment by contacting the pouch care department directly or by getting a referral from your GP.

Pouch nurse led clinics protocol algorithm
Brent, Harrow, Ealing Stoma Department  Ground Floor   Central Middlesex Hospital  Acton Lane  Park Royal Monday -Friday    09.00 – 15.00 

Rapid Access Clinics for all patients by appointment only. Please contact the pouch team directly for all pouch care or rapid access clinic appointments.

Pouch care contact details

Phone: 0208 453 2099
E-mail: lnwh-tr.internalpouchcare@nhs.net 

St Mark’s Hospital Pouch Patient Pathway

Ileo-Anal Pouch Surgery for Ulcerative Colitis – A Guide for Patients

Written by Zarah Perry-Woodford; Consultant Nurse Pouch and Stoma Care, St Mark’s Hospital

This book aims to prepare patients who are considering ileo-anal pouch surgery for ulcerative colitis. It covers topics such as stoma care, dietary and lifestyle considerations, support mechanisms and offers practical assistance for managing potential complications.

This book has been written by medical experts and critiqued by those living with an ileo-anal pouch. We hope it will be an asset for those who may be thinking of having surgery for UC or members of their family who may require information.

“This book is dedicated to all my patients who have inspired me by their bravery and determination to conquer ill health.”

If you are interested in purchasing a copy for £10 or more if you would like to help fund research and education at St Mark’s Hospital, you can pay using the following payment methods:

Direct Debit or Online Banking – when making a payment please remember to quote ‘Pouch book’ as payment reference.
Account Name: St. Mark’s Hospital Foundation
Account Number: 00085102 Sort Code: 40-52-40

Phone payment – your card details will be collected via telephone and a secure virtual terminal – Point of Sales (POS), will be used to process your payment. You will need to contact us by phoning +44 (0)20 8453 2099

Donation to St Mark’s Hospital Foundation – you can donate to us here

Once payment is complete, please contact us for further instructions regarding shipping by emailing lnwh-tr.stm-pouchbook@nhs.net or phoning +44 (0)20 8453 2099.

Patient information leaflets

Ileoanal Pouch – Perianal Skin Care

Managing strictures and adhesions – Liquid diet

Managing strictures and adhesions – soft diet

Pouch Patient Support Groups

The Red Lion Group (RLG) is a support for people who have had or are considering pouch surgery. RLG provides a friendly and informed forum for the sharing of ideas, concerns, tips, experiences and information to support pouch patients, future pouch patients and their friends and family. Email: membership@pouchsupport.org

The Ileostomy and Internal Pouch Association (IA) is a registered charity, supporting people living with an ileostomy or internal pouch. Tel: 0800 018 4724, 01702 549859, email: info@iasupport.org

Young IA offers support to young members under the age of 40, either pre-surgery or post-surgery, who undergo either an ileostomy or an internal pouch operation. Tel: 0800 0184 724 / 01702 549859, email: youngia@iasupport.org